My baby was born. He is no longer here, he passed away at 5 days old.
I will write everything as it happened, there will be things you may not want to read, especially the death of my baby boy.
It was not the journey I anticipated.
The birth was as good as it could get, but my baby was not well from the very beginning.
The last weeks of pregnancy I was asked a few times about induction, and I listened to my gut instinct to say no. At 39 weeks the consultant ran though the reasons but respected my decision to wait for labour and wait I did.
From 38 weeks I started experiencing prodromal labour, it was frustrating and uncomfortable, I kept worrying that I would not get signs of early labour and accidentally birth at home. My body knew what it needed to do though. I need to remember that.
At 40 weeks and 1 day, I noticed a couple of small, very small gushes. I assumed it was either a small leak or just usual end of pregnancy discharge so I ignored it and kept on with my day. We went for a long drive that night and I was once again dealing with prodromal labour, but I had a feeling that it was going to become something. Just something instinctual.
When we got home, I lied in bed and noticed a few more small leaks, but once again ignored them. I watched the movie Sunshine, every few nights I would watch a movie or a show to distract myself from the prodromal labour and eventually fall asleep. I was up and down what felt a million times to pee, more so than usual, which was really often anyway. At 1030pm that night, after the movie had finished I went to the toilet and noticed the leak was pink tinged. I smelled it and knew it was my waters. I knew my baby was going to be born very soon.
My partner went to bed around this time, I hesitated saying anything because I was in a bit of denial, but said 'heads up, I think my waters are leaking so I will just wait for some proper contractions' and we went to bed.
At 2am I noticed I was getting some waves, with a bit more kick to them than I had been having. They were similar enough to my last baby, where the pressure was down low instead of sharp pains across the lower part of my belly. I focused on these waves and noticed they were not regular but coming and seeming to get a little stronger at times. I got out of bed and peed again, noticing more pink fluid. I was uncomfortable enough that I went to lie down on the lounge for a bit. With more back and forth to the toilet. My bowels cleared, and then I knew, I was in early labour.
I noticed the contractions were getting stronger and at around 420am I decided to download a contraction app and time my contractions. I don't usually do that when in labour but I knew it would be helpful information for the midwife when I called.
I timed them from 0421 to 0437 and they were between 5 and 3 minutes apart, lasting between 30 and 50 seconds. So I decided to snuggle into bed next to my partner and wake him, I told him I was in labour but I didn't know when to call his mum who would come watch the kids. He decided to call straight away and it was a good thing he did.
He made a comment about getting what I mean about my waters, he said I smelled like kittens. That birthy smell.
While we waited for his mum, I got my bags ready and texted my student midwife and then called the women's assessment. I said to the midwife I was coming in, I was having contractions and felt they became proper labour around 2am when I woke up but I had suspected I was leaking fluid from about 10pm, and that baby had a cardiac condition so I wasn't going to wait for them to get stronger. She said since this was my 5th baby I knew what I was doing and that she would see me when I arrived.
My MIL arrived and we left almost straight away, the contractions were getting stronger, although not by much or any closer.
I didn't have many in the car on the way, being almost 5am it wasn't a long drive, we were there quite quickly. When we got to the hospital I had one contraction as I was getting out the car, and two more on the walk to women's assessment where I was taken in and put on the monitor. The contractions fizzled, I started to doubt it was labour until I got one good one every now and then.
I was on the monitor maybe 20 minutes before I was moved to my room. It was huge not the claustrophobic room I had been shown during my pregnancy, I felt pretty comfortable and my student was there waiting.
The midwife introduced herself and we found out she had the same name as my daughter, and that she was fine with me having bubs heartbeat checked every 15 minutes instead of constant monitoring, but she got the wireless ones anyway just in case there was a sign that meant CFM was a good idea, I was fine with that. We discussed what would happen when I needed to pus, I was surprised with the fact that there would not be just one or two extras, but 4, a paed, two other drs and a NICU nurse. I asked if they would wait behind the curtain until we needed them and that was fine. I would definitely let them know when I was feeling an urge to push so they would be ready and waiting.
We just chatted for a bit, I went through what early labour was like and that I was pretty sure I was leaking. I stood for a while and eventually got on the birth ball. Things were just so easy, I kept thinking how odd this labour was and that it just wasn't picking up like I expected.
Shift change happened an hour in, and I met my new midwife, she was just as lovely and used to work with the MGP and did homebirths so she was definitely the right kind of midwife for me. She was reassuring and kept telling me my body knew what it was doing for my baby's condition. Things I wasn't thinking myself, and it was definitely the kind of support I needed.
I watched the sun rise, and the OB came in and introduced himself, he basically said he was happy with my birth plan and wanted to know if I would be open to changing things if something happened and I just said of course I was, I was in hospital for my baby, and I would do what it took to make sure he arrived safely. I was still having such random contractions, I swear every 10 minutes I would get a good one and then they would go weaker again.
I lied in bed for a little while and then decided to get out and have a shower, I was having the occasional strong contraction that made me make a lot of noise.
I was crying at this point and cried harder when I was in the shower. I was starting to get very emotional and ended up bawling in the shower. I just had this overwhelming sense that something was not right. Baby was doing fine but I felt so strongly that he wouldn't be. I was in the shower for a while and the irregularity and lack of intensity of the contractions were bothering me a lot. They seemed to stop altogether for a while. I checked myself and when the midwife heard me say I had, she asked what I thought I was, my guess was about 8. The drs came in and were waiting, getting everything set up knowing I would surprise them with the speed of how fast I birth my babies. In hindsight I was complete. It was a few contractions where I started to doubt myself and checked again, I felt what I thought was a 2cm cervix and lost control, I said I didn't think I was 8 and that it was gong to be a long time. We sent the drs out. Little did I know at the time, I was actually poking my baby's mouth.
I had enough of the shower, thinking birth was a long way off I got back into bed, my back hurting s lot. My student midwife got me a heat pack and held it to my back while I lied there and tried to nap. I was so exhausted, I kept crying about how tired I was, the contractions never really got to a point where I felt things were moving along. I started to worry that I would end with a cesarean because bub would get distressed.
Then my waters went pop, very loudly and I didn't feel a gush but pushed ever so slightly and felt the water come out a little. The next contraction hurt a lot, I started to panic. The pressure was intense and between contractions I looked at my partner and said, I think I am pushing. he immediately sprung into action and started putting the blankets on the floor, surprising everyone in the room. I got down and immediately needed to push hard. I couldn't control it. I held onto my partner and panicked even more and it wasn't until I heard the midwife coach me into breathing that I managed to calm down. I pushed hard again and tried so hard to fight it, I felt bubs head move down. next push babys head came out, the urge didn't go so I kept pushing and he just slipped out into my hands. I heard a collective woah and then someone said he was tangled, but I said no, his cord was very short. He was also very small, it didn't seem real.
He didn't cry immediately, he made some noises but I wasn't happy with them so I rubbed his back and talked to him like I would normally do regardless of where I was. I remember looking up and seeing the paed in front of me and after a little while she asked to check his oxygen, I said yes and she jumped up and got the little monitor and stuck it on him and sat by me. I saw the levels were in the 60s and so I asked what she was looking for, she said 80s and asked if she could take him to NICU. I started to cry, because I felt like the moment I handed him over it was it. I said yes, my partner got the cord tie, I handed bub as best as I could with his short cord in my partners hands and I tied it on and then cut the cord, my midwife took photos for us.
As soon as he was free, I gave him a kiss and then handed him to the paed, and watched them all almost rush out of the room with my partner. It felt so sudden. It was just 20 minutes after birth that he was gone out of the room.
I focused next on the placenta, I waited nearly an hour but after talking with my midwife and sitting on the birth stool when the paed came back in, she asked me some questions and told me baby wasn't well so I decided to have the shot. My midwife was gentle, she talked the whole process with me and gently applied some traction while I pushed, it was surprising how much I needed to push! the placenta was absolutely tiny, I found out it weighed about 200g. I lost about 100ml of blood, which is next to nothing. As soon as I inspected the placenta and both my midwife and I were happy with it being intact she said she didn't see any tearing, just small grazing, I had no idea she was able to see tearing when the placenta came out, so I never needed to be touched. It was rather healing after my last experience. I got up, grabbed my clothes and had a very quick wash before walking to NICU where bubba was having an echo.
I don't remember how things went from here on, I just remember that bub was on CPAP and his colouring wasn't great. I got to have a hold and I remember my partner saying it wont be long and bub will be snuggled up in bed with me. I knew he was wrong. I knew bub wasn't ok. They did so many tests, I don't remember what. I did ask how big he was and he was a teeny 2.6kg, 47cm long. Very small for a 40+2 weeker. Definitely IUGR, I remember being angry they stopped the scans at 34 weeks and that would have been picked up. But I also felt very strongly that he was better off being born when he was.
After a while they swapped his CPAP to a tube under his nose, and I asked about feeding. The dr wasn't sure and wanted to observe his noises, he was convinced enough that feeding should be ok so I breastfed him. After a while my partner went home to the kids.
About 5pm the cardiologist came to tell me bub needed surgery, very soon and that they would transfer to Melbourne within the next 24 hours as soon as a bed was available. I had the nurse talk to my partner, i was in shock. Then i called my mum, I hadn't told her bub was born yet, and one of the first things i had to say was he wasn't well and we're going to Melbourne, and get her stuff organised because she would be coming with me.
The cardiologist or another dr, I don't remember said they would call at 6am to see if there was a bed. I stayed with him and had as many cuddles as I could. It felt like an eternity but it was only one night. I was back and forth feeding bub and bringing colostrum for the next 10 hours, unfortunately his blood gasses weren't good so when I came back for a feed after next to no sleep to find him back on CPAP. I still got a cuddle but I never got to feed him again.
I stayed with him from about 4am onwards, fighting sleep deprivation waiting for them to call and hear about the bed. they called at 6 and there was no bed, so I decided to go for a nap. I didn't get much so I was back again not long after. I got another cuddle, still fighting the desire to sleep, and my student came to visit before her shift began. my partner was on his way. he arrived around 8 I think.
When he arrived, I was cuddling bub, and then we decided to go get a coffee and have a toilet break. We went back to my room for a little while, around 10-10:30 I don't remember, only to get the cardio nurse come and say Melbourne rang and that they have a bed, they were flying him out at 12 and MedStar were there and they were about to intubate him. She was telling me they could get me a flight at 1, and gave me paperwork. It happened so fast. I went down and wanted a cuddle before they intubated him, I didn't want to see that. There was a rush of people, MedStar in their red uniforms and the isolette type cot they would transfer him in. It was then that it set in how sick my baby was. Everyone was telling me things and I barely remember what they said. I cuddled my baby, ever so quickly hovering over his bed before I had to leave for them to intubate.
We went back to my room and I called mum. I just cried with my partner and we waited for the nurse to come with the paperwork I needed to fly and the discharge papers.
As soon as I got them, we left for the airport, mum on her way and planning to meet us there. It was 1130 when I left the hospital.
We drove to the airport, and on the ramp going in mum pulled up beside us, perfect timing.
We went to check in, and then we waited at the gate for the flight which would leave just after 1. we didn't think to watch for the royal flying doctors who would fly bub out, we could have seen them through the window but we were trying to distract ourselves.
Saying goodbye to my partner when it was time to go was the hardest thing I have ever done.
The flight was fairly quick, only an hour and 20 minutes. When we landed we got a taxi and went straight to the royal Melbourne childrens hospital and when we got to the Butterfly ward we found bub had literally just arrived 5 minutes before we did, and the first thing I did was go over to him. it felt so surreal, I didn't like seeing the intubation tube but it was in his nose not his mouth like I was worried it would be.
Things are kind of a blur from here on, I stayed with him as much as I could and pumped as often as I was able. I started to get an awesome supply despite worrying about pumping antenatally.
We stayed in the new mothers room, I hardly ever left my baby. when he was 3 days old I broke down and cried behind the curtain and complained about not being able to do anything for my baby. it want long after that they let me have a cuddle, it was so scary with all the wires and tubes. but it felt so good to finally hold him.
Every time I held him I had an overwhelming sense of exhaustion wash over me, I tried so hard to stay awake. I held him for hours, only ever leaving to pump, toilet or eat, and sleep for about 2-3 hours.
I almost never left his side.
on Wednesday they did a CT, to see how his heart was. I was to find out what was going on after they had a good look and would talk to me the next day about what surgery will need to happen.
On Thursday I had the specialists all come and have a chat with me, mum by my side. And they told me everything. My baby didn't have a very good prognosis, and that I had the option to redirect his care to palliative care. I couldn't handle it. I wanted to give him a chance and i wanted him to have surgery. The surgeon told me of the statistics, out of 19 they were able to study, 4 survived. It was not looking good for my baby. I called my partner in the parents room and tried to remain positive, I refused to give up hope. He was driving over the next morning, I needed him to be there and bring the kids.
I remember sitting with my mum, and saying to her I felt it within my soul my baby wasn't going to make it. I just knew. It was so painful to admit it but I just knew.
My dad and sister arrived that night but due to visiting hours they picked mum up while I was holding bub, mum stayed with them that night so I had a night on my own, I didn't leave bub until after 1130 after cuddling him for several hours fighting sleep. I went back to my room, started writing in a diary mum bought specifically to write out his journey, I stopped for a moment and when I put my hand near my face and smelled him and lost it. I cried for hours, and went back to him after a couple of hours sleep.
The next day I cuddled bub for a while again, and then my parents and sister arrived. I brought them in and they met him.
I spent much of the day with my bub, I almost never left his side. The only time I did was to organise my room at Ronald Mc Donald house for when my kids and partner arrived, so we could all stay together and to hire the breast pump.
That afternoon, my partner arrived and I decided to not bring in the kids yet, I was going to do that the next day. My kids stayed with my parents for a little while and while my partner and I were with bub the surgeon came and we signed the consent forms for surgery that Monday. My partner took the kids to the room and I stayed with bub and had more cuddles, after a bit I needed to put him down nd the cardiologist came for a chat, and bub had a sudden, very quick episode of tachycardia and his rhythm changed momentarily. it happened so fast that neither the nurse or dr reacted in time to freeze the recording to take a look. I felt nothing but panic, they seemed so relaxed that I thought maybe it was nothing but I felt something wasn't right. I started to worry more.
That night, around 6 I think, I went back to the room and spent time with my family, I pumped and cried because double pumping was HARD, my back hurt and I cried because I had this gut feeling my baby was never going to get that milk. I spilled some and cried even more, eventually I fell asleep.
I woke up fairly early that Saturday, we took our time to go see bub, we had a coffee at the cafeteria and then I left to go see him. After a bit my partner brought the kids up and I came to get them 2 at a time to meet their little brother, I got photos, I took a video of him being given a little milk through his NG tube and then they left for a small break and I stayed with bub for a little bit (I think I pumped) before I went to get my lunch as they provide meals for breastfeeding mothers, and it was a sandwich with avocado and a kiwi fruit, neither or which I eat (kiwi allergy) so I came back to the room where I left my bag to get my wallet so I could go buy some McDonalds.
While I was there he had a sudden episode again of his sats dropping and the drs came to do an xray and we saw that he had fluid in his lungs. They gave him midazolam and a diuretic and he stabilised, with his oxygen in the 70s, not perfect but the nurse suggested I go get food so I did.
I sat in the food court and started eating the chips with my cheeseburger meal, my partner and kids came to join me not long after and then we walked to subway to get them lunch. I was sitting down about to start m burger when the doctor called me, she said something about an echo and they need a parent bedside. I immediately jumped up, said I had to go and RAN. 5 days postpartum and I ran most of the length of the hospital and was out of breath when it got to the elevator.
As soon as I arrived at his room I knew it wasn't good. It was full of people, they were pumping oxygen into him at a very high rate and his colour wasn't good. The cardiologist I hadn't met yet shook my hand and gently suggested I wait outside the room while they work out what was going on.
I walked out and I felt my heart break.
The surgeon came to talk with me, I asked to call my partner and walked out of the ward and called him, then I sent a message to mum to come asap to wait with the kids.
The surgeon met me and my partner at the door of nicu and said he didn't think bub had a very good chance, but if he stabilised he would operate the next day, but that what was happening wasn't a good sign at all. I saw his face, he was far from hopeful. I knew from his face that my baby was dying.
We sat in a room with the drs and they basically told us they felt it was hopeless operating. It was then that it hit me and my partner hard. He nearly vomited and I just cried.
We went back to our baby's room and watched the team continue to try to stabilise him.I kept begging him to give me better o2 levels, please give me 60, please. Then it was give me 65 please. They were all over the place, his ventilator going crazy. I knew there was nothing to be done, what they were doing wasn't working. he was literally dying in front of me. I kept talking to bub and kissing him, but at one point I said to him, if you cant fight anymore, goodbye.
They started talking amongst themselves about heartfelt, they were trying to get in contact with someone.
My partner refused to accept what was happening, at least at first. He didn't listen to the dr when she said what they were doing wasn't working, and eventually I just said, even if he makes it, he will be brain damaged from lack of oxygen. It was that point when I just broke down and begged them to let him die in my arms. They said of course, and eventually they heard about heartfelt, he would only be able to come for half an hour, from 4:15pm, and I remember thinking does this mean my baby will be dead within that time, but so relieved that we would get nice photos of our baby to hold onto.
Then we started to get things moving, they started unhooking things and got his bed ready to wheel down the hall where we would say our goodbye.
The photographer was there and waiting, he introduced himself and I don't think I reacted, all I could do was hold my baby's hand and I didn't want to let go.
I sat down on the chair after ripping off the belly wrap I had been wearing, they started to get things ready so I could have skin to skin with him before they took him off the oxygen. They got me a gown and I stripped off, not really caring about being seen, but they held up a sheet anyway. As soon as they placed him on my chest I felt some peace. We cried, we talked to him, we kissed him and loved on him so much. I played him a song which I had played a lot throughout my pregnancy, I wanted it to be the last thing he heard. It was 21 pilots cover, I cant help falling in love. I tried to sing along, breaking into tears too much to sing. After it finished, they asked if we were ready to take his tube out. And they did, I couldn't look, neither could my partner. As soon as that tube was gone I got to see his face without anything on it for the first time since birth. I pressed my nose against his, and gave him a kiss as I cried. My heart has never known so much love and heartbreak.
We didn't know how long it would take so we kept talking, kissing him. The photographer took some beautiful pictures, giving some suggestions like having both out hands on his head. One of those is one of my favourites. I passed him to dad, I wanted him to hold him.
The photographer eventually left, so all the photos he took were when he was still alive.
They left alone with bub, at one point we kept listening to his heart, beating slower and slower. I was never able to see him take a breath so I suspect they were very small. The doctor came in and had a listen, and said he still had his heart beating. We were getting quite distressed, waiting for him to die was so painful. It was dragging out, but we were also so grateful for each moment. He was heavily sedated, on a muscle relaxant so he was already floppy. It wasn't nice, it was like he was already gone.
Then we heard a breath, one I know well from my aged care training. His last breath. We knew at that moment, he was gone. We both tried to listen for his heart beating, and didn't hear anything. My partner got up and got a stethoscope and tried to listen, then I tried. we heard nothing. The doctor must have been watching because she came in and asked if we wanted her to have a listen. It felt like an eternity. She turned to us and said softly, 'He's sleeping' and we broke down.
We sat together for a while, I decided to get his little jumpsuit that flew with him and put him in it and then the social worker came in and asked if we wanted the kids to come in. I said no, I don't want them to remember their brother like this. She asked about fineral arrangements and i knew i wanted him cremated, I wouldn't want to be buried myself, I wanted to keep his ashes and have jewellery made so he never leaves me. I said to get my parents so they could say goodbye.
This was hard, as soon as mum came through that door she was in tears. Dad broke down. They both had a cuddle and said their goodbyes. I have never seen them so broken.
Then my partner couldn't handle seeing our son like that, he was cold, the colour was going. The social worker said to me, if I have any doubt about leaving then stay, and stay I did.
My partner went back to our room and stayed with the kids, he needed to be with them and I understood.
The nurses came to do footprints, in clay, ink and some stuff they had to heat up. They were so compassionate, it was surreal but the nicest way for things to have gone. He was starting to get stiff, the calcium was leaking into his muscles so when they did his prints his little fingers had curled a bit and weren't easy to get straight. I didn't know it would happen that fast. She talked to him, and held him when I had to pump, the compassion was overwhelming, I am so grateful for her. I wish I remembered her name.
I stayed with my baby all night, I had a fold out bed where I took him to bed with me and cuddled him as I fell asleep. When I woke a couple of hours later it hit me, and I cried and asked why my baby. I had a moment where I felt like I was watching myself and thought, this cry is one I have never heard before, this is a cry of grief, the cry I imagine all mothers would cry. I have never cried like that before.
His colour was changing, where his face was resting on my chest he went white, he was very cold so there was no doubt that he was gone. It wasn't easy, but I kept kissing him and hugging him. I got the little jacket, booties and mittens I made him and put them on, rigor mortis was kicking in more and I found that very hard to deal with. I got my phone and played him the song again, and was able to sing more of it to him. Still occasionally breaking down.
I never let him go except for the toilet, the nurse held him while I pumped. That was so hard to do, pumping now knowing for sure he was never going to have it.
I promised him I would watch the sunrise with him, like I did while I laboured with him. I told him how much I loved him. I made the decision to let him go when it was the time of his birth, so he came to me the same time he left me. I had been thinking about it for a while, I had started to notice the smell of death, it is a smell I have come across before and didn't want to remember my baby in that way. Unfortunately, I always will remember, but I do not regret a moment.
Morning came, and my partner came to see us, I shielded his face not knowing what his reaction would be, it was hard for me and I watched the change. He told me his mum was flying in, and would arrive soon. He hadn't told the kids, we would tell them together that morning, after I hand my baby over. It wasn't too long and then he had a cuddle, he even took some photos with him. I hesitated commenting on the smell, but I did, my partner did notice but like me, hesitated saying anything.
Then my mother in law arrived, right about the time I wanted to hand him over, but I waited and let her say her goodbye. Coincidentally, the time that I handed him to the paediatrician after his birth.
The nurses came back when I was ready, I wrapped him up and tucked him into my gown and then we walked out of the room. We had to go down the hallway, the only one in and out, I got scared because I would have to walk past the kids, but they didn't see us pass. We got the elevator, went downstairs and I carried my baby all the way down to the mortuary door. We passed a few big doors on the way and just outside the locked door and I gave him more kisses and then I handed him to the nurse and walked away. I couldn't bear to watch her walk him in that room, knowing exactly what that room was. When the door shut behind me I collapsed, I fell to the ground and cried. It hurt so much to have to walk away, my MIL and partner had to pick me up off the floor. It was so hard to walk away.
We packed out stuff in the room we said goodbye as fast as we could, we got the kids in and I had to tell them their brother died. My daughter and eldest son broke down, my heart, already broken, broke even more. My younger two didn't quite understand, death isn't something they know much about, they're a bit young.
I spent the rest of the day incredibly numb. I vaguely remember walking away from the hospital, sitting in our room with our family around us and wanting nothing more than to be alone. I couldn't stand being touched, or spoken to. My mum dad and sister decided to leave, I think they drove home that day.
My MIL stayed with us, we went out for lunch because we couldn't stand to cook. We needed a distraction. I cried almost the whole time.
That night we were alone, just the 6 of us. I felt so empty, I cried all night. Pumping was difficult. I hated every second.
Monday we went to the funeral home, the lady was so compassionate and we found out the hospital is paying for his cremation. They said don't give us the invoice, we only knew they were going to pay part, not all. It was a fair surprise, we would have had no problem paying, cremation isn't expensive, but it was a really nice gesture.
Tuesday I took back the breast pump I had hired and picked up the frozen milk stored. I got the last of the paperwork and got a call saying bubs ashes were ready to be picked up the next morning. The social worker I met earlier in the week met up with us, she told me HeartKids wants to put some money towards memorial jewellery which blew me away. It's amazing the kind of support you get, I'd only sent a message to the HeartKids representative that morning telling her our baby didn't make it.
Later that day I called MFM and spoke to my favourite midwife, she didn't know and it was so hard to tell her. Fortunately they kept my placenta so I picked it up on the Thursday.
Thursday was a blur, and Friday my partner went back to work. I had to let my GI know my baby didn't make it, I sent a message to his nurse and he called me straight away, he asked if I had the baby yet and I said yes, and then his next question was how are we... I had to say he passed away at 5 days old. That was hard. I haven't been well with my Crohn's since birth, so I am being seen on the following Thursday.
Today is Saturday. A week since my baby died. It's 4pm, so in 2 hours it will be exactly a week. I don't know how I am managing. I go between absolute rage and then devastation, much of the time I am numb. I don't know how I am feeling to be honest. I had 20 weeks to prepare for this, even though I never truly believed it would happen. I thought I would have 3-6 months with him, not 5 days. I am angry it was my baby but after reading his report, he had no real chance, the odds were against him, I was very lucky to get 5 days with him, let alone him survive to birth.
His diagnoses were:
#Complex Congenital Cardiac Disease
- Right atrial isomerism, ASVD common atrium large VSD
- balanced ventricles
- double outlet right ventricle (DORV) side by side great vessels with aorta to right of PA
- subpulmanory stenosis, small PV annulus (4.5mm) with good sized branch PAs
- TAPVD, supracardiac, partially obstructed, 3x connections to systematic circulation
# Heterotaxy with congenital asplenia
# IUGR
# Rib anomaly - 12 ribs left, 11 ribs right.
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